Katie Hull is a happy seven year old that is looking forward to starting second grade soon. She loves learning and won second place in her spelling bee last year. Katie is always up for new adventures and keeps a very positive "can do" attitude. Katie was born with Spina Bifida Myelomengocele and Hydrocephalus. A birth defect involving incomplete closure of the spine and in Katie's case resulted in partial paralysis from the waist down and full paralysis of her feet. In these past seven years Katie has continued to prove doctors wrong and fight against the odds. Katie uses the help of adaptive equipment including leg braces, walkers, crutches and a wheelchair to move around. Katie's younger sister recently learned how ride a bike and she has always cheered her on from her wheelchair with a smile in hopes to one day learn to ride a bike herself. This week at Katie's physical Therapy appointment her therapist put her on a new bike called a Rifton and off she went! As her mom watched in amazement tears streamed down her face as she finally found a bike that worked. An adaptive bike that Katie can ride around the neighborhood and park just like her little sister! However when the therapist told the family that insurance does not cover the price and when they learned how much it was they knew it would not be a reality at this time. Having a child with special needs can add financial stress on a family with all the extra equipment that is involved.
Katie is truly and inspiration to myself and so many others. I would love to help this darling friend of mine to be able to enjoy this. Maybe you would too?!
* Katie has an account in her name for donations on her behalf for adaptive equipment. Checks can be made out to Katherine Hull and sent to:
Bryant Hull
7400 Center Ave. Suite #210
Huntington Beach, CA 92647
Her mom is my dear friend Sarah of Sarah Hull Photography and is hosting photo sessions this week in her daughter's behalf. She has taken all of our family's pictures this past year and is quite the talented gal. All proceeds of these photo shoots will go directly to the Bike for Katie. Please see Sarah's website for more information.
1 comment:
We will definitely send something. What a awesome Mom, wish I knew her. She is such a inspiration just reading her blog & hearing things from you. I know to well how hard it is. Thanks for getting the word out, & letting us be apart of it.
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